I am so sorry I have not been posting or reading much as of late. I had to be admitted to the hospital for nausea and vomiting that turned out to be Gastroparesis, which means my GI tract is not working right, you can read the Mayo Clinic information if you wish by clicking on the link. I am told this is, most likely, a life long disorder and I will just have to rebuild my strength and just adapt my diet and lifestyle to this. I’m definitely not happy about it, but I will accept it and do all I can to maintain as normal a life as possible. I always joke that I get all the “pretty bracelets” while in the hospital due to all the alert bands they have to put after the ID band.
I was so blessed to have friends, and family visit me while I was in-patient. My niece even spoke to me on the phone once, which made me cry because I love her so much and missed her so much. She asked me if I went to live with God like Grandpa (my Dad died in March), and I assured her I was just “with the doctor,” and that I loved and missed her so much. She told me she loved and missed me too, this is from a two and a half year old, and she wanted me home soon! The call made me cry afterwards because of the question and also because I missed her so much. I live with my Mom and when my Dad died suddenly my Brother and his family moved in with us, so I am used to seeing her daily. I had my day brighten by visits from friends, I even got flowers, a card and and a balloon out of it as get well presents from a dear friend. He even called my Mom to ask what flowers I could have since I happen to allergic to most flowers on God’s green earth.
I look forward to catching up on all the blogs I follow, comment and write a few posts myself now that I am home. I have found not having Duluadid running through my veins on top of my normal mediations for my chronic pain and muscle spasms. I can’t wait to get started. It is still going to take time for me to rebuild my strength and I still tire easily so it will take a while. I am getting there slowly, but surely.
First rule of Ketamine Club:
You do not post on social media sites when under the influence of your Ketamine Infusion.
Second Rule of Ketamine Club:
You do not call or text anyone while under the influence of your Ketamine Infusion
Third Rule of Ketamine Club:
You always share make use new members of Ketamine Club are told everything will be ok and to remember it is just the Ketamine when you have a bad hallucination/anxiety caused by the Ketamine.
Fourth Rule of Ketamine Club:
You always take care of fellow members of Ketamine Club and check in with each other as often as possible.
Fifth Rule of Ketamine Club:
You always try to share understanding and educated others who are willing to learn about Ketamine Club.
Now for most people you don’t know what Ketamine is, why it is infused or what the heck is Ketamine Club. I am happy for you, if you are not a member of Ketamine Club that means you don’t have chronic pain and have not reached the the point that high doses of Ketamine be infused into your body and/or take it orally between infusions to help control your choric pain. I use Ketamine oral therapy and monthly infusions that are 4 hours a day for 4 days every 30 days. My monthly infusion began on Monday this week and ends today at 5pm. I am still a bit out of it from it, but I am at the very tired stage right now. This month I have afternoon infusions that start at 1pm and end at 5pm. You can read more about Ketamine Infusions on RSDHope’s website. There are various ways to do the infusions and therapy, I already shared which type of ourpatient infusions I get. I can’t wait for this to end and to start rejoining society again. I know I need these infusions to function better through out the month with the joint benefit of daily oral Ketamine therapy 3 to 4 times a day depending on the amount of pain I am in. This week of very difficult infusions make each month and my other medications work better to control the symoptoms that can also be found on RSD Hope’s web site, National Institute of Neurological Disorders and Stroke, or the Mayo Clinic. I am going to go back to following First Rule of Ketamine Club and go to bed and come back Friday night or Saturday when I am fully clear of the Ketamine infusion’s affects and more clear headed. I suggest anyone interested in Invisible Illnesses/Disablities or Spoon Theory (the description of what is is like to have a chronic illness that may/may not be invisable) on the But You Don’t Look Sick.
I wanted to let everyone get to know me a bit in my first post. I am a woman who, through a combination of choices and uncontrolable life events, has had to fight my way to become the woman I am today. I also love spending time with my brother’s children and family. *Note the baby in my arms is my niece, I sadly have not found a husband nor hand any children yet. I have my friends, family and God to thank for helping shape me into the person I am today.
My name on here is a combination of one of my favorite books and movie made from the book, “Sara Crewe”, which is the base for the book “A Little Princess,” and the movie. The movie has been made and remade multiple times and I like many of the movies. My Mom gave me her copy of Sara Crewe when I was young and I still have it sitting on my bookshelf today because I love the story so much. I like the book better than the movies, but the movies on their own are entertaining as well. In all of these the statement, though it might be slightly different depending on which you reference is “I am a princess. All girls are.” which is said by Sara Crewe.
The second part of my name is about how I am a warrior princess, I like to think of my self in many ways a Self Saving Princess. It also comes from my childhood nickname Zelda that is from Legend Of Zelda that was originally released on the NES in 1986. I don’t think women are above chivalry, or should get upset if a kind man opens a door for us, but I believe that women are able to do so much more than has been expected from us in the past. I also am a warrior because I deal with several chronic medical issues that have left me disabled. I had a choice to give up or to keep pushing on and I chose the latter, I fight everyday to keep going and to surviving. I hope to someday find my prince and once that happens I will have another person to fight beside me and help lift me up when I stuggle.
I am blessed to have a family who loves me and supports me through all of my ups and downs I have gone through in my life thus far. I am also blessed to have friends who accept me for the person I am, not expecting me to conform to what they think I should be. I sadly have lost friends to expectations and others to their own inabliltiy to accept me for me, including my perspective and beliefs.
I have some post planned to raise awareness for medical syndromes and diseases I find to be woefully misunderstood and/or rarely known by the majority of people. I like to also write about debatable topics and love to hear rebuttals from others. In addition to these topics I hope to also write about things going on in my life with hopes to share the joy, pains and lessons of Faith that come along with me growing a woman and a person.
I hope to meet others through this blog to be friends and also people who enjoy discussing topics so that we might both learn and grow together.
I look forward to reading comments, learning and finding other blogs to expand my mind and spirit with as well.